SuperGirl - Redefining Normal

June 01, 2018  •  8 Comments

This sweet, witty, and charming little girl, Calysta, definitely has me wrapped around her little fingers.  I took some time to try and capture her captivating, and heartwarming story in a video as her family struggles to find a diagnosis as to why her body just doesn't work like it's supposed to.  Her mom, April, narrates and shares some of the challenges they have faced with Calysta.  This story could be many more minutes long and still not tell Calysta’s full story. She is finally growing and learning while her parents are learning how to redefine their normal with a toddler who is a “tubie” girl – a GJ tube-fed little one who relies on this tube to provide her sustenance as well as to help maintain a somewhat more stable blood sugar (although it's definitely not normal, even with the GJ tube feedings).  Soon they hope to have answers as to a diagnosis that will hopefully also bring with it the best treatment plans available to her.  Please keep this sweet family in your prayers as they continue to fight for answers.

Fairy CalystaFairy CalystaCalysta pauses mid-session with an adorable smile that is perfectly her.


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